Wednesday, April 20, 2011

Evan's Story

Evan
Age 12

Rhode Island
Hasbro Children's Hospital

Spina Bifida

Evan, also known as "the Mayor," is well known throughout his community and Hasbro Children’s Hospital. It’s not hard to see why when you meet this friendly 12-year-old.

Doctors say Evan is the only kid they know who wakes up from sedation telling jokes. And that’s typical of this outgoing young man with a great sense of humor. Always laughing and always smiling, Evan has learned to make his struggles with spina bifida merely a bump in his road of life.

Being born with spina bifida brings with it a host of medical problems. Evan has been in and out of the hospital frequently with hydrocephalus and shunt placements, various surgeries and a variety of fractures.

Although Evan has some adversities, he does not let them stand in his way. He loves a variety of sports, enjoys bowling, and is learning to play the violin. Evan’s determined to never let anything get in his way of living life the way he wants to.

3 comments:

  1. Here is my boy! We are on our way to a fun filled year! Our first event with the Children's miracle network is the kick off even at Walmart, Warwick Mall on May 12th at 10am. Feel free to join us and help celebrate this awesome day!

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  2. Evan we here are all proud of you!!! You are an amazing young man who we believe, inspires everyone around you!! We are very proud of how positive you are about life and blessed to know you!! Love Sue, Frank and Dylan :)

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  3. Evan you are a remarkable kid and so DARN cute!! and I'm not just saying that because I'm your Auntie. Congratulations on your honor. Enjoy all the fun that comes with it. Oh ya give Mickey a kiss for me. Love Auntie Stacie and Uncle Steve. xoxo

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