Wednesday, October 5, 2011

Even closer!!!

We can't believe that we will be on our way in 14 days! Time is flying by! Anyway, make sure that you keep checking into this site, I will be updating while we are in FL and DC!

Friday, September 23, 2011

ACE Hardware Kickoff

Salk's Ace Hardware, Warwick RI participated in the ACE Hardware Kickoff today.
As usual, the community welcomed Evan with open arms and hearts and treated him to an amazing time! ACE hardware was so generous by giving Evan a shopping spree! He bought a Bocce Set and a shovel! He wants to go back when he decides how he wants to redecorate his room, for paint and accessories!
Those of you in the Warwick or North Kingstown area, stop in to Salks and look for Evan's picture and donate a card! All money raised goes directly to Hasbro Children's Hospital!

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Thursday, September 15, 2011

Red Sox

On August 27th,the day before Hurricane Irene, Evan, his 3 friends,Godmother,and family braved the rain and went to watch A Red Sox game. The seatswere amazing...5 rows back fromthe field, right next to the Pesci Pole.

Evan was brought near the locker room, and Dan Wheeler, a pitcher, came to meet Evan,took pictures and gave autographs! what an amazing time!

Friday, September 9, 2011

Almost here!

I can't believe that we only have 40 more days until Evan's big trip! We are getting so excited!
We will be updating the site when we are on our trip, so please keep checking back!

Thursday, August 11, 2011

Miracle Treat Day!

Today was Miracle Treat Day at Dairy Queen! You didn't need to twist anyone's arm to go to this fundraiser!! LOL! We had a blast and a blizzard.....YUMMY!
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Friday, June 17, 2011

June 11, 2011

Evan participated in the Gaspee Day Parade! The Mayor of Warwick lead the parade and Evan the little Mayor was at the end of it!

Monday, May 23, 2011

Rite Aid has another fund raiser....bowling!

Rite Aid did a fantastic job at their first annual bowling fund raiser. They had about 80 people come out and bowl on a Sunday evening. It was so much fun that next year I bet next year they will have even more! I am not sure if this is a coincidence or not, but Rite Aid held their fund raiser at the same place that Evan has been bowling at weekly on a league for 4 years now!

Saturday, May 14, 2011

Rite Aid Sponsor

Today Evan dropped in at our local Rite Aid. They were having a BBQ to help raise money for Children's Miracle Network and Hasbro Children's Hospital. They are planning many more events during this upcoming year, that we plan on attending. I will keep you posted so that if you want you can join us!

Julie and Evan

Thursday, May 12, 2011

Our Launch Event

Our Launch Event was a huge success! It started off with his very own police escort to Walmart to see that there was a huge crowd waiting for MY champion! We went into Walmart where most of the associates were clapping and cheering him on. His Neurosurgeon was there waiting for him as well as his principal, school nurse, TA and his former special educator. As well as most of his family members. Evan was then presented with a gift card so he can go on a shopping spree! He headed straight to electronics and bought himself a camera for our up coming trip to Washington DC and Florida!

Wednesday, May 4, 2011

The Launch Event

Please join us in the Children's Miracle Network Launch event. It is located at Warwick Mall Walmart at 10 am on May 12th. If you can not make it to this event, please try to remember to buy a "balloon" the next time you are there. These donations go to our own Children's Miracle Network hospital, Hasbro Children's Hospital.
If you know Evan, then you know how they have been so instrumental in keeping him healthy.
Thanks in advance!

Tuesday, April 26, 2011

Children's Miracle Network Hospitals Champions

Champions is a Children's Miracle Network Hospitals program that brings attention to the important work being done at its 170 children’s hospitals. It does this by honoring 51 remarkable kids who have faced severe medical challenges, and helping them tell their stories.

The Champions program designates a child in every state who has bravely battled a serious injury or illness. The Champions represent the nearly 17 million children treated at Children’s Miracle Network Hospitals every year. The 2011 Champions have dealt with a wide variety of injuries and illnesses including genetic diseases, organ transplants and traumas, as well as various types of cancer.

The Champions travel for a week in October, first to Washington, D.C., where they traditionally meet with their state senators on Capitol Hill, and the President of the United States during a visit to the White House. They then take a private chartered flight, provided by Delta Air Lines, to Orlando, Fla. There, champions meet Children’s Miracle Network Hospitals sponsors, hospital representatives and media partners who all convene to celebrate a year of medical miracles during the Children’s Miracle Network Hospitals Celebration event at Walt Disney World Resort.

Wednesday, April 20, 2011

Evan's Story

Age 12

Rhode Island
Hasbro Children's Hospital

Spina Bifida

Evan, also known as "the Mayor," is well known throughout his community and Hasbro Children’s Hospital. It’s not hard to see why when you meet this friendly 12-year-old.

Doctors say Evan is the only kid they know who wakes up from sedation telling jokes. And that’s typical of this outgoing young man with a great sense of humor. Always laughing and always smiling, Evan has learned to make his struggles with spina bifida merely a bump in his road of life.

Being born with spina bifida brings with it a host of medical problems. Evan has been in and out of the hospital frequently with hydrocephalus and shunt placements, various surgeries and a variety of fractures.

Although Evan has some adversities, he does not let them stand in his way. He loves a variety of sports, enjoys bowling, and is learning to play the violin. Evan’s determined to never let anything get in his way of living life the way he wants to.